We live in an age in which dying, and knowledge about dying, have moved from the realm of cultural inheritance to that of institutional management. The decision to die at home, or to take on the responsibility of caring for a dying person, is thus a courageous act of human reclamation. But because the dying in our culture have been largely sequestered into hospitals and nursing homes, it is necessary that terminally ill individuals who would do otherwise, and those who care for them, contemplate and engage with the process of dying as a learning experience. Of course the re-personalization of dying means that the experience, for each person, is itself the primary teacher. That said, we can glean helpful lessons from the experiences of others.
The following websites address topics that may be of interest to people with terminal illness.
This New York Times article explains the common end-of-life symptoms. From the New York Times: The Symptoms of Dying.
Support for family caregivers:
The Family Caregiver Alliance provides support, information, and resources for family caregivers. The new FCA CareJourney online portal provides information, support and resources for family caregivers of adults with chronic physical or cognitive conditions such as Alzheimer’s, stroke, Parkinson’s, and other illnesses.
Support for Eldercare services
Elder Impact provides advice and resources to ease stress during the later years of life.
The U.S. Office on Women’s Health (an agency of the U.S. Department of Human Health Services) provides a Caregiver Stress Fact Sheet that covers commonly asked questions about caregiving and special stressors for women.
Being the primary caregiver for a person with mesothelioma is not an easy task. If a loved one or family member has been diagnosed with mesothelioma, and you are the person who is their strongest source of support, it will be important for you to take care of not only the patient battling the cancer, but yourself as well.
We appreciate your support.
Stay In The Know
Sign up for the IFC email list to be informed about upcoming workshops, news and other items related to end-of-life choices. We respect your privacy. Your contact information will not be shared outside of the IFC organizations.
The Crestone End of Life Project is our community group based in Crestone, Colorado.
Poetry & Photography
Read poetry about the sacredness of transition from life into death. To share in reflection, remembering or as part of a farewell or memorial ceremony.